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Att stödja syskon till barn med långvarig sjukdom: Barnsjuksköterskors erfarenheter
Jönköping University, School of Health and Welfare, HHJ, Dept. of Nursing Science.
Jönköping University, School of Health and Welfare, HHJ, Dept. of Nursing Science.
2022 (Swedish)Independent thesis Advanced level (degree of Master (One Year)), 10 credits / 15 HE creditsStudent thesisAlternative title
To support siblings of children with long-term illness : Pediatric nurses' experiences (English)
Abstract [sv]

Bakgrund

Hela familjen involveras när ett barn drabbas av en långvarig sjukdom.  Syskon har också ett behov av att bli lyssnade på och känna sig sedda och det är viktigt att syskon får känna sig delaktiga i vården. 

Syfte

Syftet med denna studie var att beskriva barnsjuksköterskors erfarenheter av att stödja syskon till barn med långvarig sjukdom inom pediatrisk slutenvård.

Metod

Studiens design var kvalitativ där data insamlades från individuella intervjuer utifrån en semistrukturerad intervjuguide. Deltagarna var barnsjuksköterskor och grundutbildade sjuksköterskor som arbetat inom pediatrisk slutenvård i minst tre år. Totalt deltog sex sjuksköterskor i studien. Intervjuerna analyserades med hjälp av kvalitativ innehållsanalys med induktiv ansats. 

Resultat

Resultatet visade att barnsjuksköterskor gav syskonen uppmärksamhet genom små handlingar, som att hälsa på syskonen och lära sig deras namn. De stöttade syskonen genom att ta sig tid att leka, lyssna samt gav syskonen individanpassad information. Barnsjuksköterskorna beskrev att det viktigaste var att syskon erbjöds att få vara fysiskt närvarande på avdelningen, men att de skulle få vara involverade i vården i den mån de själva ville. Dessutom beskrevs vikten av den familjecentrerade vården och det professionella teamets betydelse.

Slutsats

Barnsjuksköterskor har en viktig roll i att stödja syskonen till barn med långvarig sjukdom, för att syskonen inte ska känna sig bortglömda.

Abstract [en]

Background

The whole family is involved when a child suffers from a long-term illness. Siblings also have a need to be listened to and feel seen and it is important that siblings feel involved in the care. 

Aim

The purpose of this study was to describe pediatric nurses' experiences of supporting siblings of children with long-term illness in pediatric inpatient care.

Method

The design of the study was qualitative where data were collected from individual interviews based on a semi-structured interview guide. The participants were pediatric nurses and undergraduate nurses who worked in pediatric inpatient care. A total of six nurses participated in the study. The interviews were analyzed with qualitative content analysis with an inductive approach. 

Results

The result showed that pediatric nurses’ gave the siblings attention through small actions, like greeting the siblings and learning their names. They support the siblings by taking time to play, listen and gave them personalized information. The pediatric nurses’ described that the most important thing was that siblings were offered to be physically present in the ward, but that they should be involved in the care to the extent they want. They also described the importance of family-centered care and the professional team.

Conclusion

Pediatric nurses have an important role in supporting siblings of children with long-term illness, so they don’t feel forgotten.

Place, publisher, year, edition, pages
2022. , p. 33
Keywords [en]
sibling, pediatric nurse, family-centered care, semi structured interview, qualitative content analysis
Keywords [sv]
syskon, barnsjuksköterska, familjecentrerad vård, semistrukturerad intervju, kvalitativ innehållsanalys
National Category
Nursing
Identifiers
URN: urn:nbn:se:hj:diva-57448ISRN: JU-HHJ-OMA-2-20220849OAI: oai:DiVA.org:hj-57448DiVA, id: diva2:1673507
Subject / course
HHJ, Nursing Science
Available from: 2022-06-21 Created: 2022-06-21 Last updated: 2025-10-13Bibliographically approved

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Att stödja syskon till barn med långvarig sjukdom - Barnsjuksköterskors erfarenheter(553 kB)419 downloads
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