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Tills döden skilde oss åt: Närståendes upplevelser av palliativ vård i livets slutskede - en kvalitativ litteraturöversikt
Jönköping University, School of Health and Welfare, HHJ, Dept. of Nursing Science.
Jönköping University, School of Health and Welfare, HHJ, Dept. of Nursing Science.
2022 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesisAlternative title
Until death seperated us : Relatives’ experiences of palliative care at the end of life - a qualitative literature review (English)
Abstract [sv]

Bakgrund: Globalt uppskattas 55 miljoner vara i behov av palliativ vård. I Sverige erhåller cirka 60 000 människor palliativ vård. Syftet med den palliativa vården är att symtomlindra och bibehålla god livskvalitet. Det är av vikt att sjuksköterskan undersöker närståendes upplevelser av palliativ vård för att kunna bemöta och ge ett gott stöd.

Syfte: Syftet var att beskriva närståendes upplevelser av palliativ vård i livets slutskede.

Metod: En kvalitativ litteraturöversikt med induktiv ansats där 14 artiklar analyserades till resultatet.

Resultat: Två teman och sex subteman identifierades. Temat behov av att känna trygghet med tillhörande subteman; Att få tillräcklig information, att ha en god relation till vårdteamet och att befinna sig i en trygg miljö. Temat behov av att känna stöd med tillhörande subteman; att känna sig trygg i vårdarrollen, att få vara inkluderad, att få stöd i att hantera dödens närvaro.   

Slutsats: Närstående upplevde vikten av att känna trygghet och att få stöd. En meningsfull relation och tillräcklig information ansågs vara avgörande för att skapa känslan av trygghet. Behovet av att erhålla stöd från vårdpersonalen upplevdes vara viktigt för att få möjligheten att vara involverad och att ha ett inflytande inom vårdförloppet. Familjecentrerad vård återspeglades i resultatet genom att de centrala aspekterna framkom i sjuksköterskans och vårdteamets bemötande med närstående.

Abstract [en]

Background: Globally 55 million people are estimated to be in need of palliative care. In Sweden, approximately 60,000 people receive palliative care. The purpose of palliative care is to relieve symptoms and maintain a good quality of life. It is important that the nurse examines relatives' experiences of palliative care in order to be able to encounter relatives and provide good support.

Aim: The aim was to describe relatives' experiences of palliative care at the end of life.

Method: A qualitative literature review with an inductive approach where 14 articles were analyzed for the result.

Result: Two themes and six subthemes were identified. The theme of need to feel secure with associated subthemes; to receive sufficient information, to have a good relationship with the care team and to be in a safe environment. The theme of need to feel supported with associated subthemes; to feel safe in the caregiver role, to be included and to be supported in dealing with the presence of death. 

Conclusion: Relatives experienced the importance of feeling safe and receiving support. A meaningful relationship and sufficient information were considered crucial to creating a sense of security. The need to receive support from the care staff was felt to be important in order to have the opportunity to be involved and to have an influence within the care process. Family-centered care was reflected in the results by the fact that the central aspects emerged in the nurse’s and care team’s encounter with relatives.

Place, publisher, year, edition, pages
2022. , p. 24
Keywords [en]
participation, partnership, nursing, nurse, family-centered care
Keywords [sv]
delaktighet, partnerskap, omvårdnad, sjuksköterska, familjecentrerad vård.
National Category
Nursing
Identifiers
URN: urn:nbn:se:hj:diva-59278ISRN: JU-HHJ-OMA-1-20230874OAI: oai:DiVA.org:hj-59278DiVA, id: diva2:1723289
Subject / course
HHJ, Nursing Science
Supervisors
Examiners
Available from: 2023-01-17 Created: 2023-01-02 Last updated: 2025-10-13Bibliographically approved

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