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Beyond silence: A scoping review of provided support for grieving children with intellectual disabilities or autism spectrum disorder
Jönköping University, School of Education and Communication.ORCID iD: 0009-0005-5311-3580
Jönköping University, School of Education and Communication, HLK, CHILD.ORCID iD: 0000-0003-4079-8902
Jönköping University, School of Education and Communication, HLK, CHILD.
2024 (English)In: Omega, ISSN 0030-2228, E-ISSN 1541-3764Article, review/survey (Refereed) Epub ahead of print
Abstract [en]

Children with intellectual disabilities (ID) or autism spectrum disorder (ASD) are considered unable to grieve or understand the concept of death and might not receive grief support after the death of a beloved person; hence, they are at risk of developing complicated grief. This scoping review identified existing grief support for children with ID or ASD. Searching seven databases yielded 514 records; six studies met the predefined inclusion criteria. The six studies identified grief support, including discussions, participation in death rituals, family support, stories, and professional interventions. The support could be organized into three levels, micro, meso, and exo, overlooking the macro level completely, indicating that grief support for these children tends to be irregular and inconsistent.

Place, publisher, year, edition, pages
Sage Publications, 2024.
Keywords [en]
autism spectrum disorder, children, grief support, intellectual disabilities, intervention
National Category
Nursing Psychiatry
Identifiers
URN: urn:nbn:se:hj:diva-63376DOI: 10.1177/00302228231226343ISI: 001137015300001PubMedID: 38176635Scopus ID: 2-s2.0-85181462700Local ID: HOA;;928374OAI: oai:DiVA.org:hj-63376DiVA, id: diva2:1828326
Available from: 2024-01-16 Created: 2024-01-16 Last updated: 2025-10-13

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Bonin, MariaAugustine, LillyMeng, Qi

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