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Nonparticipation in a Digital Health Intervention Study Among Older Adults: Uneven Involvement, Biased Outcomes, and the Effect of Weighting
Division of Ageing and Social Change, Department of Culture and Society, Linköping University, Norrköping, Sweden.
Jönköping University, School of Health and Welfare, HHJ, Institute of Gerontology. Jönköping University, School of Health and Welfare, HHJ. Studies on Integrated Health and Welfare (SIHW). Aging Research Center, Karolinska Institutet and Stockholm University, Stockholm, Sweden.ORCID iD: 0000-0002-8617-0355
Division of Ageing and Social Change, Department of Culture and Society, Linköping University, Norrköping, Sweden.
Department of Health, Medicine and Caring Science, Linköping University, Linköping, Sweden.
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2024 (English)In: The journals of gerontology. Series A, Biological sciences and medical sciences, ISSN 1079-5006, E-ISSN 1758-535X, Vol. 80, no 1, article id glae265Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: The involvement of older adults in research on digital health is uneven with respect to, for example, age, gender, health status, and digital skills. However, little is known regarding the effect of the uneven involvement of older adults in digital health research on researched outcomes. This study helps to fill this knowledge gap, identifies the effects of uneven involvement of older adults in digital health research on researched outcomes, and also develops a correction for this.

METHODS: Data are retrieved from a digital health intervention for postoperative monitoring of people who underwent day surgery in Sweden. Based on field information on the recruitment process and researched outcomes for the intervention, this study (i) tested intervention effects by using 2 standard unweighted procedures in a sample of 281 individuals aged 50 years or older, and then (ii) used the information on participants, nonparticipants, and their respective probabilities to be involved in the intervention study to perform a weighting of the intervention effects for each step of selection and for the study group membership.

RESULTS: The intervention effects were found to be overestimated due to overrepresentation of groups that gained from receiving the intervention. No intervention effects were found after adjustment for participation bias.

CONCLUSIONS: Selective participation of older adults in digital health research biases research outcomes and can lead to overestimation of intervention effects. Weighting allows researchers to correct and describe the effect of selective participation on researched outcomes.

Place, publisher, year, edition, pages
Oxford University Press, 2024. Vol. 80, no 1, article id glae265
Keywords [en]
Biased outcomes, Digital technologies, Exclusion, Inequalities, Participation in research
National Category
Public Health, Global Health and Social Medicine
Identifiers
URN: urn:nbn:se:hj:diva-66895DOI: 10.1093/gerona/glae265ISI: 001380778700001PubMedID: 39500718Scopus ID: 2-s2.0-85213597387Local ID: HOA;;991253OAI: oai:DiVA.org:hj-66895DiVA, id: diva2:1924449
Projects
“Supporting Self-care by Information and Communication Technology for Older People with Long-term Conditions” (ICT4SELFCARE)
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2014-4100Available from: 2025-01-06 Created: 2025-01-06 Last updated: 2025-10-13Bibliographically approved

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Kåreholt, Ingemar

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