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Participation matters: Experiences how organisational decisions impact children with disabilities’ engagement in Pediatric habilitation clinics
Jönköping University, School of Education and Communication, HLK, CHILD.ORCID iD: 0009-0007-4429-7300
Jönköping University, School of Health and Welfare, HHJ, Department of Rehabilitation. Jönköping University, School of Health and Welfare, HHJ. CHILD.ORCID iD: 0000-0003-2827-9325
Örebro University.
Jönköping University, School of Education and Communication, HLK, CHILD.ORCID iD: 0000-0003-4079-8902
2025 (English)Conference paper, Oral presentation with published abstract (Refereed)
Abstract [en]

Children with disabilities are less engaged in activities in everyday life than children without disabilities. Previous research indicates that if children are involved in the intervention process in the pediatric habilitation clinic, the possibility of becoming involved in everyday life increases. Children with disabilities in Sweden receive support from pediatric clinics, which have a long tradition of working in interprofessional teams. Those clinics have a great challenge in meeting the ongoing increase in the number of children, especially those with neuropsychiatric disabilities. This combined with the fact that the Convention on the Rights of the Child, makes it essential to study how organisational decisions affect participation and teamwork.

The aim is to investigate how professionals at pediatric clinics perceive those organisational factors impact children’s opportunities for participation in their intervention process and the interprofessional teamwork.The method is qualitative. Data has been collected through focus groups with professionals from clinics in four Swedish regions, one focus group per clinic, and from ongoing interviews with professionals.The preliminary results indicate that the professionals’ individual work and teamwork are affected by organizational routines and decisions. This affects the child´s possibility to be involved in intervention process.The conclusion is that exploring professionals‘ experiences of organisational factors as facilitators and barriers to children´s participation can contribute to decisions that increase the child’s engagement in the intervention process and enable increased participation in everyday life.

Place, publisher, year, edition, pages
2025.
National Category
Pediatrics Nursing
Identifiers
URN: urn:nbn:se:hj:diva-69693OAI: oai:DiVA.org:hj-69693DiVA, id: diva2:1995354
Conference
4th Triennial Meeting of the International Alliance of Academies of Childhood Disability (IAACD) and the 37th Annual Meeting of the European Academy Of Childhood-onset Disability (EACD), Heidelberg, Germany, June 24-28, 2025
Available from: 2025-09-05 Created: 2025-09-05 Last updated: 2025-10-13Bibliographically approved

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Sjödin, LindaLygnegård, FridaAugustine, Lilly

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